Carol’s Story

Your Name: Carol

When were you diagnosed as gluten intolerant? 62

Tell your story: I was initially diagnosed with hoshimoto’s thyroiditis about 3 years ago along with dry eyes and dry mouth, rosacea, seborrheic dermatitis, as well as other problems. Then 2 years ago specific food sensitivities were found – all dairy including casein and whey as well as rice. At that point I stopped eating all dairy, and prior to that I stopped eating any sweeteners except stevia.

Back in 1995 a chiropractor found tropical parasites in my blood which had been there for 13 years and had caused that many years of systemic candida.

In May of 2012 I had a gluten gene sensitivity test done by Enterolab. The results showed I have one of the main genes that predisposes to gluten sensitivity and celiac sprue (HLA-DQB1*0201 or HLA-DQB1*0302) as well as a non-celiac gene predisposing to gluten sensitivity (any DQ1, DQ2 not by HLA-DQB1*0201, or DQ3 not by HLA-DQB1*0302). Other tests showed I also have leaky gut, fat malabsorption and poor protein absorption.

My doctor says the parasites were the environmental trigger that set off gluten sensitivity 32 years ago. I would appreciate it if someone could explain the HLA-DQ analysis.

What is your biggest challenge being gluten-intolerant? :I left for a 2 month vacation 4 days after receiving the test results. While I have tried to follow a strict gluten free diet the past 2 months, I am sure I have experienced cross contamination eating at restaurants and other people’s homes. That’s the part that drives me crazy.

I have also been on many web sites, but the products offered are useless for me. It is not easy finding products that are gluten free, dairy free, and sugar free. Therefore, I eat protein (no beef, organic when I can), fresh vegetables and fruits (at least 5 cups), nuts every day, and very few carbs (potatoes, corn). I lost 3 pounds in the past 2 months, and while most women would be pleased, I lost 12 pounds 3 years ago when I first changed my diet and I really don’t want to lose any more.

What advice or tip would you give others who are gluten-intolerant? : Find information you can give to family members to read in order to help them understand why you are so concerned about cross contamination and how difficult it is for you to eat out at a restaurant. Keep reading as many sites as possible because getting accurate information regarding whether specific foods are gluten free is not necessarily easy.

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